He is brain injured. Uh, yep.
I like the new neurologist. He speaks my language and knows what I am looking to do, as a mom, for my kid. He understood my lack of desire for psych meds. He never placed a limit on my kid's potential. He was great! When I asked: "What do we do next?" the doctor answered "We do the next thing." So, what's that exactly? Sedated MRI with and without contrast and the genetics work-up. Then we get plugged in with the psychiatrist who will manage him and his meds. We stick with the speech, occupations, and physical therapies and he stays in the special needs preschool.
The good news? He is not mentally retarded. That diagnosis will be removed from his medical records. That is something I have been fighting since he was first tested. Anyone who deals with my kid knows that his concerns do not come from a lack of mental ability.
Here's that sleepy bug at 3 am. His test required a 24 hour sleep deprivation. What an undertaking that was!!!
A sleepy Kaeleb walking into the Children's hospital.
Kaeleb during testing. He screamed so much that he broke the capillaries in his cheeks!
Taking a break at the hospital cafeteria.
Waiting for the Neurologist.
4 comments:
He's such a strong little boy! And so adorable. I hope the news gets better and better.
Shannon
You are such a good mom. I can't believe what a big handsome boy he is turning into.
Wow,I cannot believe the testing that is out there and what you have to do to prepare for it. You are a strong momma and look out for the best for your kids, it really shows in your posts.
ps I have triplets too, one named Caleb, that is what brought me to your blog :)
Lea,
Not sure if you are into the DAN! stuff or not but I wanted to pass along something to you that I recently learned from our DAN! doctor (Dr. Demio). He told us that he does not recommend contrast when getting an MRI or CT for our kids (I have 2 with autism). He said that contrast is a heavy metal and that our kids cannot excrete heavy metals well. Heavy metal toxicity leads to brain damage in our kids. I hope I am not being out of line. I just wanted to pass that along. Kaeleb sure is a tough little guy. :)
Elizabeth
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